Cerebral Palsy Care at Home
Cerebral Palsy Care at Home
People living with cerebral palsy often have complex care needs that require both clinical expertise and genuine understanding of the individual. CareLink Direct provides nurse-led cerebral palsy care at home across Sussex and Surrey, supporting people of all ages with the consistency and clinical oversight that complex needs require.
Cerebral Palsy Care at Home
Cerebral palsy is a group of permanent conditions affecting movement, muscle tone and coordination, caused by damage to the developing brain before, during or shortly after birth. The effects vary widely between individuals.
Some people with cerebral palsy have mild coordination difficulties while others have complex physical, communication and health needs requiring significant daily support.
In addition to the physical effects of cerebral palsy, some individuals also have associated conditions including epilepsy, learning disability, speech and communication differences, visual impairment, and swallowing difficulties. Care needs must be understood and planned around the whole person.
When is specialist care at home the right choice?
You may be considering specialist cerebral palsy care at home if:
- Your loved one has cerebral palsy with complex care needs that standard home care cannot safely manage
- Clinical procedures such as enteral feeding, seizure management or catheter care are part of the daily routine
- Your loved one is transitioning to adult services and continuity of care is important
- There have been changes in health or mobility that have increased care needs
- Family carers need consistent, specialist support alongside them
How our care supports people and families
- Nurse-led care built around the individual’s specific type and presentation of cerebral palsy
- Support with clinical procedures including enteral feeding, seizure management and catheter care
- Personal care delivered with patience, consistency and respect for the person’s preferences
- Positioning and pressure area monitoring
- Coordination with physiotherapists, speech and language therapists, neurologists and GPs
- Consistent, familiar carers who know the person well
- Regular review of the care plan as needs or circumstances change
What support may include
Care packages are built around individual assessment. Depending on the person’s needs, support may include:
- Personal care including washing, dressing and oral hygiene
- Enteral feeding support where swallowing is affected
- Seizure management and medication support
- Catheter or bowel care where continence is affected
- Positioning support and pressure area care
- Communication support adapted to the individual’s needs
- Waking and sleeping night care where needed
Arranging cerebral palsy care at home
If your loved one has cerebral palsy and you are looking at specialist care at home, please contact us. We will take the time to understand what their specific needs are, what has worked well in previous care arrangements, and what a well-planned, nurse-supervised package would look like for them.
Registered for TDDI
“Registered to provide Treatment of Disease, Disorder or Injury (TDDI)”, meaning we are approved to deliver complex clinical care at home for people living with serious illness, disability, or injury.
